TitleImproving the quality of life of caregivers of persons with spinal cord injury: a randomized controlled trial.
Publication TypeJournal Article
Year of Publication2009
AuthorsSchulz, R, Czaja, SJ, Lustig, A, Zdaniuk, B, Martire, LM, Perdomo, D
JournalRehabil Psychol
Volume54
Issue1
Pagination1-15
Date Published2009 Feb
ISSN0090-5550
KeywordsAdult, Age Factors, Aged, Caregivers, Combined Modality Therapy, Cost of Illness, Depression, Female, Humans, Male, Middle Aged, Quality of Life, Sick Role, Social Support, Spinal Cord Injuries
Abstract

<p><b>OBJECTIVE: </b>To assess the efficacy of two psychosocial interventions for caregivers of older persons with spinal cord injury (SCI).</p><p><b>DESIGN: </b>A multisite, three-group, randomized controlled trial comparing two active intervention conditions with each other and to an information-only control group. One hundred seventy-three caregiver and care-recipient dyads were randomly assigned to one of three conditions: a caregiver-only treatment condition in which caregivers received a multicomponent intervention based on their risk profile; a dual-target condition in which the caregiver intervention was complemented by a treatment targeting the care recipient, designed to address both caregiver and care recipient risk factors; and an information-only control condition in which the caregiver received standard printed information about caregiving, SCI, and aging.</p><p><b>OUTCOME MEASURES: </b>A multivariate outcome comprised of six indicators linked to the goals of the interventions was the primary outcome of the study. The multivariate outcome included measures of depressive symptoms, burden, social support and integration, self-care problems, and physical health symptoms.</p><p><b>RESULTS: </b>At 12 months, caregivers in the dual-target condition had improved quality of life as measured by our multivariate outcome when compared to the control condition. Using the dyad as the unit of analysis, the dual-target condition was superior to both the control condition and the caregiver-only condition in our multivariate outcomes analysis. Dyads enrolled in the dual-target condition had significantly fewer health symptoms than control condition and caregiver-only condition participants and were less depressed when compared to participants in the caregiver-only condition. In follow-up analyses we found that a higher proportion of caregivers in the dual-target condition had clinically significant improvements in depression, burden, and health symptoms when compared with the caregiver-only condition.</p><p><b>CONCLUSION: </b>Caregivers are in need of and can benefit from interventions that help them manage the medical and functional limitations of the care recipient. Intervention strategies that target both the caregiver and care recipient are particularly promising strategies for improving the quality of life of caregivers.</p>

DOI10.1037/a0014932
Alternate JournalRehabil Psychol
PubMed ID19618698
PubMed Central IDPMC2729464
Grant ListR01 AG015321 / AG / NIA NIH HHS / United States
R24 HL076858 / HL / NHLBI NIH HHS / United States
HL076858 / HL / NHLBI NIH HHS / United States
R01 AG026010 / AG / NIA NIH HHS / United States
AG026010 / AG / NIA NIH HHS / United States
R01 NR008272 / NR / NINR NIH HHS / United States
AG15321 / AG / NIA NIH HHS / United States
R01 AG015321-10 / AG / NIA NIH HHS / United States
R24 HL076852 / HL / NHLBI NIH HHS / United States
P30 MH071944 / MH / NIMH NIH HHS / United States
MD000207 / MD / NIMHD NIH HHS / United States
NR08272 / NR / NINR NIH HHS / United States
HL076852 / HL / NHLBI NIH HHS / United States
P30 MH071944-04 / MH / NIMH NIH HHS / United States
R01 NR009573-02 / NR / NINR NIH HHS / United States
R01 AG026010-02 / AG / NIA NIH HHS / United States
R24 HL076858-05 / HL / NHLBI NIH HHS / United States
R01 NR009573 / NR / NINR NIH HHS / United States
P60 MD000207 / MD / NIMHD NIH HHS / United States
MH071944 / MH / NIMH NIH HHS / United States
NR09573 / NR / NINR NIH HHS / United States
P60 MD000207-019001 / MD / NIMHD NIH HHS / United States
R24 HL076852-05 / HL / NHLBI NIH HHS / United States
R01 NR008272-05 / NR / NINR NIH HHS / United States