TitleFamily caregiving of persons with dementia: prevalence, health effects, and support strategies.
Publication TypeJournal Article
Year of Publication2004
AuthorsSchulz, R, Martire, LM
JournalAm J Geriatr Psychiatry
Date Published2004 May-Jun
KeywordsAged, Caregivers, Cost of Illness, Dementia, Depression, Guidelines as Topic, Health Personnel, Health Services for the Aged, Health Status, Humans, Mental Disorders, Public Health, Quality of Life, Social Support

<p>The authors summarize the dementia caregiving literature and provide recommendations regarding practice guidelines for health professionals working with caregivers. Family caregiving of older persons with disability has become commonplace in the United States because of increases in life expectancy and the aging of the population, with resulting higher prevalence of chronic diseases and associated disabilities, increased constraints in healthcare reimbursement, and advances in medical technology. As a result, family members are increasingly being asked to perform complex tasks similar to those carried out by paid health or social service providers, often at great cost to their own well-being and great benefit to their relatives and society as a whole. The public health significance of caregiving has spawned an extensive literature in this area, much of it focused on dementia caregiving because of the unique and extreme challenges associated with caring for someone with cognitive impairment. This article summarizes the literature on dementia caregiving, identifies key issues and major findings regarding the definition and prevalence of caregiving, describes the psychiatric and physical health effects of caregiving, and reviews various intervention approaches to improving caregiver burden, depression, and quality of life. Authors review practice guidelines and recommendations for healthcare providers in light of the empirical literature on family caregiving.</p>

Alternate JournalAm J Geriatr Psychiatry
PubMed ID15126224
Grant ListK01 MH065547 / MH / NIMH NIH HHS / United States
P30 MH52247 / MH / NIMH NIH HHS / United States
P50 HL65111 / HL / NHLBI NIH HHS / United States
P50 HL65112 / HL / NHLBI NIH HHS / United States
R01 AG15321 / AG / NIA NIH HHS / United States
R01 NR08272 / NR / NINR NIH HHS / United States
U01-MH46015 / MH / NIMH NIH HHS / United States